effectivehealthcare.ahrq.gov
Search epidemiology and medical biometry/statistics data collections and supporting datasets from USA.
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canjem.ca
Research data portal for exploring epidemiology and medical biometry/statistics records, including datasets.
health-study-hub.de
Dataset repository covering epidemiology and medical biometry/statistics, with searchable clinical trial data.
krebsdaten.de
The German Centre for Cancer Registry Data at the Robert Koch Institute provides cancer statistics for Germany. It offers an interactive database query with information on current cancer statistics and covers many cancer sites. Its methods section includes registration completeness, incidence, prevalence and survival rate estimations. It publishes reports on cancer epidemiology in Germany.
onderzoekmetmensen.nl
The Overview of Medical Research in the Netherlands (OMON) is a website for searching medical research. It includes research from the former National Trial Register, ToetsingOnline, the Research Portal and the public portal of CTIS, and allows users to register their own research in the Research Portal. The former NTR information is available in English only, and other information is generally available in both Dutch and English.
mitime.org
MIRAGE is a start-up repository project at Middlesex University funded by JISC. It is developing a warehouse of medical images to support online retrieval tools on the institutional website, complementing the existing OASISplus (Blackboard Vista) teaching system. The chosen platform is GNU GFIT, an open source adapted for archiving medical images, with an external database at image.mdx.ac.uk.
iknl.nl
The Netherlands Cancer Registry is a national registration maintained by the Netherlands Comprehensive Cancer Organisation (IKNL) since 1989. It provides statistics on cancer incidence, prevalence, survival and mortality in the Netherlands, and comprises data on newly diagnosed cancer patients, including diagnosis, tumour staging, site, morphology, co-morbidity and treatment received directly after diagnosis.
chictr.org.cn
The Chinese Clinical Trial Register is a primary registry of the WHO International Clinical Trials Registry Platform. The website provides a trial search, registration guidance, and policy documents. It includes statistics by country, disease code, institution, and registration status.
biolincc.nhlbi.nih.gov
BioLINCC is a clinical specimen database operated by the National Heart, Lung, and Blood Institute. It allows users to search for study datasets and biospecimens, including open specimen collections, and to submit requests for them. Accounts are required to request resources, and users must verify their identity through Login.gov or ID.me depending on location.
isrctn.com
The ISRCTN registry is a clinical study registry recognised by the WHO and ICMJE that accepts proposed, ongoing and completed clinical research studies. It provides content validation, curation and unique identification numbers needed for publication, and all study records are freely accessible and searchable. Registration is ideally prospective, though retrospective registration is accepted.
novartis.com
Novartis clinical trials information page describing the company's clinical research and its transparency materials, including lay protocol synopses, patient trial summaries, clinical trial results and anonymized dossiers submitted to health authorities. It also covers opportunities for patients and healthcare professionals to participate and points to ClinicalTrials.gov for a full listing of active and completed studies.
dnbc.dk
The Danish National Birth Cohort is a research data collection open to researchers with research ideas requiring prospectively collected data from pregnancy and childhood. Its site provides information on applying for access, an overview of available data, publications, and interview questionnaires, and lists response rates and acknowledgement guidance.
clinicaltrialsregister.eu
The EU Clinical Trials Register offers a free search of clinical trials in European Union member states and the European Economic Area. Its search engine queries information entered into the EudraCT database, with simple and advanced search modes and filters. It also displays information on EudraCT trials, and ongoing EU/EEA trials are displayed through the Clinical Trials Information System.
iddo.org
Infectious Diseases Data Observatory (IDDO) is an organisation that enables reuse of infectious disease data to support disease control efforts. It pools and standardises data, applies strict privacy controls to pseudo-anonymise data, shares data responsibly and maintains gold standard data repositories for a range of infectious diseases including malaria, COVID-19, Ebola and antimicrobial resistance. It also provides data access guidelines and related resources for users.
healthdatanexus.ai
Health Data Nexus is an open data platform for AI research and education in medicine. It offers federated data search, allowing users to search partner platform PhysioNet resources without leaving the site. Datasets are listed under credentialed access, and access zones impose requirements including a data use agreement and, for Zone 3, REB approval.