PROFILES is a registry for studying the physical and psychosocial impact of cancer and its treatment, based on a growing population-based cohort of short- and long-term cancer survivors. Researchers from IKNL and Tilburg University use it with hospital specialists to set up studies, collect patient-reported data, and link it to clinical data from the Netherlands cancer registry.
The Hive
The Hive is the University of Utah's research data repository, hosted by the J. Willard Marriott Library. It supports research data deposit, features community collections and recent uploads, and provides access to library resources and contact information. The repository recently migrated to a new platform.
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0PROFILES is a registry for studying the physical and psychosocial impact of cancer and its treatment, based on a growing population-based cohort of short- and long-term cancer survivors. Researchers from IKNL and Tilburg University use it with hospital specialists to set up studies, collect patient-reported data, and link it to clinical data from the Netherlands cancer registry.
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0Birkbeck Data Repository is a pilot service run by the library that allows researchers at Birkbeck to upload data and obtain a DOI. Data is stored on an Arkivum server, and the repository supports browsing by year, school or person, quick and advanced search, and OAI 2.0.
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0The Research Vessel Observation Database publishes observational data from research vessels including Hakuho-Maru, Shinsei-Maru and Tansei-Maru. Data from FY2019 onward are stored by JAMSTEC and released sequentially after the publication moratorium period expires, while the Atmosphere and Ocean Research Institute works on releasing earlier data. The site offers cruise lists, data searches and CTD cast searches.
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0The UK Data Archive is described as home to the UK's largest collection of social, economic and population data, covering over 50 years. It provides researchers with training, support and data access as lead partner of the UK Data Service.
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0JASPAR is an open-access database of curated, non-redundant transcription factor binding profiles from six taxonomic groups. It stores manually curated binding preferences as position frequency matrices that can be converted into models for scanning DNA sequences and predicting transcription factor binding sites. From 2026 it also stores deep learning models and discovered position frequency matrices linked to its PFM collections.
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The Virginia Open Data Portal is a state data catalog with featured datasets and popular tags. Datasets cover topics such as broadband application areas, EMS heat-related illness incidents, overdose emergency department visits and deaths, birth defects, and shared risk and protective factors. The portal also includes groups for economy, education, government, business, environment and natural resources, family and health, transportation, and geographic information.
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